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COPD Patient-Powered Research Network
NCT02803242 · COPD Foundation
In plain English
Click the button to translate this study into plain language — what it is, who qualifies, and what participation looks like.
About this study
The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.
Eligibility criteria
Inclusion Criteria:
* 18 years or older that says yes to one of the following:
* COPD diagnosis
* Current or former smoker
* Family history of respiratory disease
* Symptomatic of respiratory disease
Exclusion Criteria:
* Non-English speaking
Study design
Enrollment target: 75000 participants
Age groups: adult, older_adult
Timeline
Starts: 2014-08
Estimated completion: 2030-01
Last updated: 2022-03-10
Interventions
Other: Patient Reported Outcomes
Primary outcomes
- • Patient Reported Outcome Measurement Information System-29 (PROMIS-29) (15 years)
- • COPD Assessment Test (CAT) (15 years)
- • Modified Medical Research Council (MMRC) Dyspnea Scale (15 years)
Sponsor
COPD Foundation · other
With: Kaiser Foundation Hospitals, Center for Health Research
Contacts & investigators
ContactGretchen M McCreary, MA · contact · gmccreary@copdfoundation.org · 866-731-2673
ContactElisha Malanga · contact · emalanga@copdfoundation.org · 866-731-2673
All locations (1)
COPD FoundationRecruiting
Washington D.C., District of Columbia, United States