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The T1D Exchange Registry
NCT04629586 · T1D Exchange, United States
In plain English
Click the button to translate this study into plain language — what it is, who qualifies, and what participation looks like.
About this study
The T1D Exchange Registry is a research study, conducted over time, for individuals with type 1 diabetes and their supporters. Participants volunteer to provide their data for research (for example, by answering questions in annual surveys). Once enrolled, Registry participants have the opportunity to sign up for other studies on various topics related to type 1 diabetes.
To participate, you will be asked to:
* Read and sign an online informed consent form
* Take a survey describing specific demographic and type 1 diabetes management information
* Update your information annually
* Periodically opt in for additional research opportunities (if you choose), i.e. taking new surveys or uploading health device data
Eligibility criteria
Inclusion Criteria:
* Clinical diagnosis of type 1 diabetes.
* Individuals younger than 18 years of age must have parent/guardian consent.
* Must be able to read and understand English.
* Currently living in the United States
Exclusion criteria:
* Does not use insulin and has not had a pancreatic or islet cell transplant.
* Cannot fully read and understand English.
* Does not currently live in the United States.
Study design
Enrollment target: 50000 participants
Age groups: child, adult, older_adult
Timeline
Starts: 2018-12-13
Estimated completion: 2030-12-31
Last updated: 2023-05-08
Interventions
Other: No intervention
Primary outcomes
- • Gather longitudinal data from individuals living with type 1 diabetes. (10 years)
Sponsor
T1D Exchange, United States · other
Contacts & investigators
ContactKelsie LaFerrier · contact · klaferriere@t1dexchange.org · (617) 892-9941
ContactJulia Ravelson · contact · jravelson@t1dexchange.org · (617) 892-9941
All locations (1)
T1D ExchangeRecruiting
Boston, Massachusetts, United States