UNTOLD Ovarian Cancer Unmet Needs Survey

NCT07070726 · Masonic Cancer Center, University of Minnesota

Recruiting

In plain English

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Official title

UNderstanding The Experience of Ovarian Cancer Life After Diagnosis (UNTOLD) Study

About this study

The goal of this study is to comprehensively measure ongoing concerns and unmet needs of individuals living with ovarian cancer. To accomplish this, the UNderstanding The experience of Ovarian cancer - Life after Diagnosis (UNTOLD) study will be conducted using a mixed-methods approach. Ovarian cancer survivors will be enrolled to participate in UNTOLD to complete a one-time survey regarding their experiences. Up to 40 survivors will be subsequently identified to complete a follow-up interview. To ensure these sample sizes, along with a representative sample, a combined recruitment strategy will be employed using the California Cancer Registry (population-based) and recruitment through ovarian cancer advocacy groups.

Eligibility criteria

Inclusion Criteria: * Ability to read and write in English * Diagnosed with ovarian cancer (ovarian, primary peritoneal, fallopian tube) Exclusion Criteria: \-

Study design

Enrollment target: 2000 participants

Age groups: adult, older_adult

Timeline

Starts: 2025-07-10

Estimated completion: 2028-01-01

Last updated: 2025-07-20

Primary outcomes

• Supportive Care Needs (Day 1)

Sponsor

Masonic Cancer Center, University of Minnesota · other

With: Centers for Disease Control and Prevention

Contacts & investigators

ContactRachel Vogel, PhD · contact · isak0023@umn.edu · 612-624-6928

All locations (1)

Masonic Cancer CenterRecruiting

Minneapolis, Minnesota, United States

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