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Multiple Sclerosis Implementation Network (Registry)
NCT07415824 · The University of Texas Health Science Center, Houston
In plain English
Click the button to translate this study into plain language — what it is, who qualifies, and what participation looks like.
Official title
Multiple Sclerosis Implementation Network
About this study
The Multiple Sclerosis Implementation Network (MSIN) is a collaboration between the Multiple Sclerosis Association of America (MSAA), The University of Texas Health Science Center at Houston (UTHealth Houston), Dell Medical School at The University of Texas at Austin, and Novartis Pharmaceuticals Corporation. The goal of MSIN is to improve Multiple Sclerosis (MS) care, patient health, and quality of life through the development and support of implementation research and clinical practice collaboration. MSIN brings together healthcare teams, people with MS, and research leaders in MS and implementation science (IS) to learn, share, test, implement, and disseminate innovations that improve MS care, patient health, and quality of life.
This ClinicalTrials.gov record pertains to the MSIN Patient Registry, which is a comprehensive database that integrates participants' electronic health records from various providers.
Eligibility criteria
Inclusion Criteria:
* diagnosed with Multiple Sclerosis
* can speak and understand English comfortably
Study design
Enrollment target: 2000 participants
Age groups: adult, older_adult
Timeline
Starts: 2025-04-28
Estimated completion: 2030-12-31
Last updated: 2026-02-17
Primary outcomes
- • Multiple sclerosis disability as assessed by the Patient-Determined Disease Steps (PDDS) Scale (5 years)
- • Perception of cognitive impairment as assessed by the Multiple Sclerosis Neuropsychological Questionnaire (MSNQ) Scale (5 years)
Sponsor
The University of Texas Health Science Center, Houston · other
With: Novartis, Multiple Sclerosis Association of America, The University of Texas at Austin
Contacts & investigators
ContactAmanda Montague, EdM · contact · AMontague@MYMSAA.org · 800-532-7667
InvestigatorAmanda Montague, EdM · study_director, Multiple Sclerosis Association of America
All locations (3)
Multiple Sclerosis Association of AmericaRecruiting
Cherry Hill, New Jersey, United States
The University of Texas at AustinRecruiting
Austin, Texas, United States
The University of Texas Health Science Center at Houston (UTHealth Houston)Recruiting
Houston, Texas, United States